What is Friedreich Ataxie?

Friedreich Ataxie (FA) is a rare (1:50.000) neurological, progressive genetic disease, that the German neurologist Nicolaus Friedreich first described in the 1860s.

The disease often shows it self at the beginning of puberty, sometimes in early childhood or even with adults. But always as a progressive one. Friedreich Ataxia (FA) can have a multitude of symptoms: many people with FA have a scoliosis, often diabetes or cardiological problems. These last symptoms can of course reduce the life expectancy of many people with FA.

Main symptoms of FA are the progressive staggering or stumbling gait and frequent falling. People with FA therefore often need a wheelchair from an early age on. Most people with FA can at some point suffer from both vision impairment as well as hearing problems.

Unfortunately Friedreich Ataxia currently has no cure nor any medication to treat it. But worldwide there are several research projects looking into the effects of a number of different approaches and if they can influence Friedreich Ataxie or even cure it, e.g. by using various types of gene therapy.

As these types of research can be expensive, patient organisations like the Friedreich Ataxie Förderverein e.V. and the Friedreich's Ataxia Research Alliance are actively supporting these efforts. One of the ways we are doing this is by organising rideATAXIAs, the proceeds of which will be used to further the research into treating and curing FA.

Would you like to know more about Friedreich Ataxia, the work of the Friedreich Ataxie Förderverein e.V. and how you can support us?

Then please join us at the ride or visit our website!

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